About debra of America

The Dystrophic Epidermolysis Bullosa Research Association of America (debra), is the only national non-profit dedicated to funding research and providing services and programs for those with Epidermolysis Bullosa (EB) –The Worst Disease You’ve Never Heard Of.

debra is dedicated to finding a cure for EB, which affects 1 out of every 20,000 live births in the United States. EB is a genetically based disease characterized by chronic, painful blistering. The skin and mucous membranes are so fragile that the slightest touch can cause severe blistering inside and outside the body. Present at birth, EB affects men and women of all races and ethnic groups and sometimes, when there is no family history, it occurs as the result of a spontaneous genetic mutation. Today, there is no cure or treatment for EB, except daily wound care and bandaging. Genetic research is making progress towards treatments and a cure.

debra of America's mission is to improve the quality of life for all people living with EB, their families, and caregivers through programs and services while funding research to find a cure and treatments for Epidermolysis Bullosa.