Join us on May 20th for the 4th Annual dash4debra!
Epidermolysis Bullosa (EB) is a rare, genetic connective tissue disorder affecting 1 out of 20,000 babies born in the US every year. It is the worst disease you've never heard of. EB victims have extremely fragile skin that blisters and tears from minor friction or trauma. This affects the outer skin, internal organs, and bodily systems. EB is painful and in some cases fatal before the age of 30. There is no treatment and no cure for EB. Daily wound care, pain management, and protective bandaging are the only options for the individuals who are suffering from this disease.
Please join me on Sunday, May 20 for the 4th Annual dash4dEBra to support those afflicted with EB. The money raised for this event will go to support research, provide medical supplies to families and patient access to specialists. Many patients with EB travel out of state for care and support, and many insurances do not cover the supplies needed for these patients' care. debra of America is the only national nonprofit organization dedicated to funding research and providing supportive services and programs for those with EB. Last year, dash4dEBra raised over $21,000 to help cure EB - thank you!
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