Race Weekend: May 5-6, 2018
Join TEAM DEBRA at the Pig Party on May 5-6, 2018 in Cincinnati, Ohio! The Flying Pig Marathon Weekend is for runners and walkers alike. Our goal is to raise $10,000 to fund groundbreaking research and a cure and treatment for Epidermolysis Bullosa (EB), help us reach that goal and raise much-needed EB Awareness.
Interested in participating in the one of the Flying Pig events? Email firstname.lastname@example.org or call debra of America at (212) 868-1573 ex 109.
What is EB?
Epidermolysis Bullosa, or EB, is a rare genetic connective tissue disorder that 200 children per year are born with in the United States. There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. Daily wound care, pain management, and protective bandaging are the only options available for people with EB.