Race Day: March 18, 2018
Join TEAM DEBRA on March 18, 2018 as we race in the United Airlines NYC Half! The 13.1-mile course will take runners from around the world on a tour of NYC. Help TEAM DEBRA raise much-needed awareness and raise money to fund groundbreaking research for a cure and treatment for Epidermolysis Bullosa (EB).
Interested in running in the 2018 United Airlines NYC Half? Email firstname.lastname@example.org or call debra of America at (212) 868-1573 ex 109.
What is EB?
Epidermolysis Bullosa, or EB, is a rare genetic connective tissue disorder that 200 children per year are born with in the United States. There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. Daily wound care, pain management, and protective bandaging are the only options available for people with EB.