Race Day: March 19, 2017
Enjoy free, guaranteed entry with TEAM DEBRA at the Skechers Performance Los Angeles Marathon! Runners follow the Stadium to the Sea course that begins at Dodger Stadium, winds past famous LA landmarks, and ends steps away from the Santa Monica Pier. Help TEAM DEBRA raise much-needed Epidermolysis Bullosa (EB) awareness and raise money to fund research to find for a cure and treatment for EB.
Interested in running in the 2017 Skechers Performance Los Angeles Marathon? Email email@example.com or call debra of America at (212) 868-1573 ex 109.
What is EB?
Epidermolysis Bullosa, or EB, is a rare genetic connective tissue disorder that 200 children per year are born with in the United States. There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. Daily wound care, pain management, and protective bandaging are the only options available for people with EB.