The cost of doing nothing is too great. Success is in the doing.

So we organized Rafi’s Run.


Rafi's Run is a 5K Race and Fun Run.

The Fifth Annual Rafi’s Run will take place on Sunday, March 6, 2016 at 10 am (Fun Run at 11 am) in Riverside Park at West 103rd Street, New York City. All proceeds raised by Rafi’s Run will go directly to research to help find a cure for EB. We've partnered with debra of America to collect and distribute these funds.

The purpose of Rafi's Run is to create an event that brings our community together to help an incredibly brave young girl and her family in their quest to find a cure for EB. To achieve our goal of a world without EB, we as a community need to support the ongoing innovative research in a meaningful way. To do that, we are asking each of you to promote the purpose of Rafi's Run to your friends and colleagues and commit to try and raise $250 for research. We know that raising money can be difficult and we appreciate all of your efforts. As a community we can come together and make a huge impact on the lives of children just like Rafi. Together we can make a difference in the lives of thousands.




To Sign Up, select Register as an individual. You will be able to:

- Start a Team

- Join a Team

- Join as an Individual

- Register Friends & Family


Matching-Gifts_notext (1).jpgCorporate Matching

Start a team at your workplace today! Did you know that many employers offer corporate matching gift programs that have the potential to double, triple, or even quadruple your gift? Click here to check if your employer has a Matching Gift Program. 


If you have any questions about how to register or set up your page, please email, or call 212-868-1573 x101 for assistance!