HANIA by Anya Cole
When we first heard about Rafi, like most people we had no idea what EB was. As we learned more about this awful disease and it's devastating affects the more we wanted to do something to help. As we have come to know Rafi and her family we have been overwhelmed by the courage and resilience of this brave little girl. HANIA by Anya Cole is proud to take part in Rafi's Run this year for the first time and hope that you can help us to raise funds to not only find a cure but also to help the families who live EB.
The HANIA by Anya Cole Team.