Welcome to the HANIA by Anya Cole Page
When we first heard about Rafi, like most people we had no idea what EB was. As we learned more about this awful disease and it's devastating affects the more we wanted to do something to help. As we have come to know Rafi and her family we have been overwhelmed by the courage and resilience of this brave little girl. HANIA by Anya Cole is proud to take part in Rafi's Run this year for the first time and hope that you can help us to raise funds to not only find a cure but also to help the families who live EB.
The HANIA by Anya Cole Team.
Please click the button on the right of the page to complete your donation. Every little bit helps us get closer to a cure for The Worse Disease You've Never Heard Of.
Did you know that of those born with EB in 2014, 22% are no longer with us? That's why we count on the support of people just like you: Because the cost of doing nothing is too great.
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