5th Annual Rafi's Run! Alyson Johnson Homepage
Thank you for joining me in the fight to find a cure for epidermolysis bullosa (EB)! This is a painful and debilitating disease that my friend Jackie and her daughter Rafi battle every day of their lives. There is currently no treatment or cure, but I am convinced that with more research funding we will see a cure in the not-so-distant future. There has already been meaningful progress in the five years since the inception of Rafi's Run. I am honored be a part of this and hope that you will donate. Each and every contribution counts! Thank you!
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