Welcome to My Personal Page
Thank you for supporting me in raising money and awareness for the EB community, and debra of America. Please click the button on the right of the page to complete your donation. No amount is too small and each dollar gets us closer to a cure for The Worse Disease You've Never Heard Of. But you may have heard us talk about our friend, the brave and beautiful Rafi and her incredibly strong parents Jackie and Brett. Let's make sure no future families have to endure the unbelievable pain and suffering EB causes. Did you know that of those born with EB in 2014, 22% are no longer here? That's why we count on the support of friends and family: Because the cost of doing nothing is too great.
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