Our Fifth Annual Rafi's Run!
Thank you for supporting me in my efforts to raise money and awareness for the EB community, and debra of America. Please click the button on the right of the page to complete your donation. Every little bit helps us get closer to a cure for The Worse Disease You've Never Heard Of. Did you know that of those born with EB in 2014, 22% are no longer with us? That's why we count on the support of people just like you: Because the cost of doing nothing is too great. Those that know me and my family know what Rafi means to us and just how far we will go to make her life better. From the bottom of my heart, I thank you. xx
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