Welcome to My Personal Page
Its's that time of year again. I wish we didn't have to do this, but we do! Still, there is no cure. Still, Children live in pain. Still, Rafi suffers. Rafi is the daughter of our very dear friends Brett and Jackie Kopelan. She was born with Epidermolysis Bullosa (EB). EB is a rare, genetic disorder, characterized by the presence of extremely fragile skin and recurrent blister formation. As many of you know, I am not really a runner, but if that is what it takes to help fight EB, I'd do it everyday. Please consider a donation to a very worthy cause to help find a cure for EB.
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