Dear Family & Friends,
As many of you may know, we are spending this year studying in Israel at Midreshet Harova. This year is all about personal growth, maturation, understanding more about Judaism and spirituality, and of course, Chesed, helping others. We recently registered to run in the Jerusalem Marathon, taking place on March 17th, 2017,as a part of Team Butterfly an orgazination that supports those affected by Epidermolysis Bullosa (EB).
EB is a devastating genetic skin disorder that affects a child from birth. A child has 1 in 50,000 chance of being born with EB – and is not specific to any race, ethnicity or gender. EB is a group of diseases characterized by blistering of the skin after minor impact to the skin. A child who suffers from EB lacks a critical protein that binds his or her layers of skin together. Without this “velcro,” when this child moves, his or her skin slides apart, blisters and shears off leading to severe pain, disfigurement, and in too many cases, a premature death.
Our team is called ‘Team Butterfly’ since those born with EB are often called “Butterfly Children” because as the analogy goes, their skin is as fragile as the wings of a butterfly. Unfortunately, last year the Jewish EB community was hit hard & close to home with the passing of their own ‘Butterfly Child’, Yisrael Simcha Possick. To honor the life, courage, & strength of Yisrael Simcha, I and the rest of Team Butterfly will be running & raising money in his memory.
To beat EB, we must rally our communities to spread awareness and recruit those willing to help. Every donation brings us one step closer to enabling a child with EB to live a full and pain-free life. I ask you to help me honor Yisrael Simcha’s memory and support Team Butterfly by making a donation to this worthy cause and sharing this letter with your family, friends, and colleagues.
We are running to help save lives and find a cure and with YOUR help, "Butterfly Children" worldwide will have a chance to live the way every child deserves to live: pain-free. Please support this cause by making a tax-deductible donation through our teams personal fundraising page. The process is fast, easy, and secure :). Even a small donation will help me achieve our goal!
Cash and check donations can be sent to the debra of America office at 75 Broad Street, Suite 300, New York, NY 10004. Please make checks payable to “debra of America” and put “Team Butterfly, Shani Wolfson” on the memo line. If you have any questions, please do not hesitate to contact me at firstname.lastname@example.org or contact debra of America at email@example.com.
Thank you so much for all your help and support :)
All the best,
Shani Wolfson, Olivia Butler and Rebecca Stolarov