Welcome to the Machon Maayan Team page! We are super excited to be running for Team Butterfly! We are running for two reasons: to help find a cure to EB, "The Worst Disease You Have Never Heard Of" and to raise awareness about EB. We are running to help those afflicated with this disease have a chance at enjoying pain-free lives. Please help Team Machon Maayan make a difference in the lives of these "Butterfly Children." Any donation to any team member is one step closer to finding a cure. Because the cost of doing nothing is too great. Thank you all for your support!