Welcome to My Personal Page
Dear Family and Friends,
Hi! As many of you may know, I’m studying in Israel this year in MMY! I think that an integral part of my growth this year is Chesed, helping others. For that reason, I recently registered to run in the Jerusalem Marathon for Team Butterfly to help spread awareness and raise money to find a cure EB this year b’Ezrat Hashem! Team Butterfly, Epidermolysis Bullosa (EB)- “The Worst Disease You’ve Never Heard of”, is a cause I deeply care about. EB is a debilitating and devastating genetic disorder that affects a child from birth. EB is extremely rare – a child has 1 in 50,000 chance of being born with EB – and is not specific to any race, ethnicity or gender. EB is defined as a group of diseases characterized by blister formation after minor trauma to the skin. A child who suffers from EB lacks a critical protein that binds his or her layers of skin together. This protein acts as the “velcro” that attaches one layer of his or her skin to the other. Without this “velcro,” when this child moves, his or her skin slides apart, blisters and shears off leading to severe pain, disfigurement, and in too many cases, a premature death. Children with more severe forms of EB can have a 60% cumulative risk of dying by age 15 and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life. Our team is called ‘Team Butterfly’ sincethose born with EB are often called “Butterfly Children” because as the analogy goes, their skin is as fragile as the wings of a butterfly. Unfortunately, last year the Jewish EB community was hit hard & close to home with the passing of their own ‘Butterfly Child’, Yisrael Simcha Possick. To honor the life, courage, & strength of Yisrael Simcha, I and the rest of Team Butterfly will be running & raising money in his memory!
Curing EB is a race against a clock moving at warp speed. Plainly speaking, the more funds we raise, the more research & services thatcan be funded and the more lives thatcan be saved. Every donation brings us one step closer to enabling a child with EB to live a full and pain-free life. Please help me honor Yisrael Simcha’s memory and support Team Butterfly by helping me reach my goal to make a difference in this cause! With the help of each and every Person, "Butterfly Children" worldwide will have a chance to live the way every child deserves to live: pain-free. Please support the cause by clicking the link below & making a tax-deductible donation through my personal fundraising page. The process is fast, easy, and secure. Even a small donation will help me achieve my goal of $600!
Thank you! Tizku Lemitzvot!:)
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