Cause a Butterfly Effect
With the help of Hashem, I will be participating in the Jerusalem Marathon in March. I will be running to raise funds for the Dystrophic Epidermolysis Bullosa Research Association (DEBRA), along with Team Butterfly. Team Butterflyis a charity running organization that works to raise awareness, supply medical aid, and research a cure for Epidermolysis Bullosa.
Epidermolysis Bullosa, or EB, is a rare connective tissue disorder marked by extremely fragile skin that tears and blisters with even slight friction. This can lead to feeding difficulty, respiratory issues, and in bad cases, muscular dystrophy. Most children with moderate to severe cases of EB don't make it past the early stages of life. There is currently no cure or treatment for EB.
We are running to raise funds for care supplies and medical aid to those with EB, medical research to find a cure, as well as to raise awareness for this rare yet detrimental disease.
Please help us support those with EB by either running with or donating to Team Butterfly. Help us change the world and end EB. Tizku L'mitzvot!
Team Butterfly Registration for the Jerusalem Marathon is open now!
Registration link: http://Events.debra.org/Jerusalem2018
Learn more about Team Butterfly and EB here: http://butterflyfoundation.co/index.html#
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