Welcome to My Personal Page
Hey hey! Welcome to my humble abode of the internet. Let me tell you a little bit about why I've gathered you all here today:
Epidermolysis Bullosa (EB) is "the worst disease you've never heard of." It's a very rare genetic skin disease that causes extremely painful blistering on the surface of the skin from any contact or friction; unfortunately, in moderate to severe cases, most EB children do not make it past the early stages of life. What makes this doomed disease even worse is the fact that there's currently no cure or treatment. But there is a glimmer of hope.
And that's Team Butterfly.
This beautiful organization, which I will iyh be running with, raises money to support research for a cure for EB, also providing vital services to the families and children affected by EB.
David Beiss, a close relative of my dear friends, has EB. He started Team Butterfly to get young people involved with the cause and to make sure that children with EB can live long and pain-free lives. We are those young people. We can make a difference.
Baruch Hashem, there are so many wonderful organizations out there to run with for the Marathon. What makes this one special is that you *know* you will be affecting individual lives. So I ask you to join me: donate to Team Butterfly and help save the lives of EB children around the world.
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