EB: A Cause That Has a Right to Be Acknowledged
As my second year of expanding my Jewish identity by immersing myself in Torah learning in Israel comes into full swing, I've had many months to reflect on what it means to be the best Jew I can be. And as the weeks go by, I've come to realize that it expands to more than just learning Torah; as the great sage Ben Zoma famously stated in Avot (4:1), "Who is wise? He who learns from everyone."
Which is precisely why I'm choosing to run this year in the Jerusalem Marathon for Team Butterfly.
Most of you have probably never heard of Team Butterfly, and rightfully so. Our team is raising money to help fund medical treatment and research to find a cure for those suffering from a rare genetic connective tissue disorder called Epidermolysis Bullosa (EB) which afflicts approximately 200 children born each year in the United States alone. People who have EB are often called "Butterfly Children," because their skin is a fragile as the wings of a butterfly. The pain they feel is constant and debilitating. It occurs in all racial and ethnic groups and to both genders. Since there currently is no cure or specific treatment for EB, daily wound care, pain management, and protective bandaging are the only options available.
I chose to run for Team Butterfly for one sole purpose: People that suffer from rare conditions such as this one are often ignored. But they, too, have a story. They, too, have an equal impact on the world. We, as a miraculously surviving nation, know how it feels to be neglected in this world. Therefore, it is our obligation to give to others who suffer as the underdogs of our society.
Please help me reach my $600 goal by March 9th and donate to this incredible cause. Your dollars are literally saving lives.
To donate: http://debra.convio.net/site/TR/Events/JerusalemMarathon?px=1047713&pg=personal&fr_id=1350
To find out more about EB: http://debra.convio.net/site/TR?sid=1100&type=fr_informational&pg=informational&fr_id=1350
Thank you all! Tizku l'mitzvot!
Sara Schatz :)
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