Welcome to My Personal Page
I am spending the year studying in Israel at Yeshivat Mevaseret Tzion. This year I am working on personal growth, increasing my spirituality, and delving deep into topics on Judaism. Chesed, or community service, is also a key aspect that I have decided to truly focus on this year. For that reason, I recently registered to run in the Jerusalem Half-Marathon, taking place on March 17th, 2017, as a part of Team Butterfly to raise research funds for Epidermolysis Bullosa (EB). Our team is called ‘Team Butterfly’ since those born with EB are often called “Butterfly Children” because as the analogy goes, their skin is as fragile as the wings of a butterfly.
EB is a debilitating and devastating genetic disorder that affects a child from birth. EB is extremely rare – a child has 1 in 50,000 chance of being born with EB – and is not specific to any race, ethnicity or gender. EB is defined as a group of diseases characterized by blister formation after minor trauma to the skin. A child who suffers from EB lacks a critical protein that binds his or her layers of skin together. This protein acts as the “velcro” that attaches one layer of his or her skin to the other. Without this “velcro,” when this child moves, his or her skin slides apart, blisters and shears off leading to severe pain, disfigurement, and in too many cases, a premature death. Children with more severe forms of EB can have a 60% cumulative risk of dying by age 15 and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life.
Unfortunately, last year the Jewish EB community was hit hard and close to home with the passing of their own ‘Butterfly Child’, Yisrael Simcha Possick. To honor the life, courage, & strength of Yisrael Simcha, I and the rest of Team Butterfly will be running & raising money in his memory. Every donation brings us one step closer to enabling a child with EB to live a full and pain-free life. I ask you to help me honor Yisrael Simcha’s memory and support Team Butterfly by making a donation to this worthy cause and sharing this letter with your family, friends, and colleagues. Please support this cause by clicking the link below & making a tax-deductible donation through my personal fundraising page. The process is fast, easy, and secure. Even a small donation will help me achieve my goal of $600!
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