Welcome to My Personal Page
Dear friends, neighbors and family,
You may have seen the flyers advertising for an event called dash4debra 5K run/walk.
When I read the flyer and noticed what disease this event was I knew I had to sign up to run. As it turns out, we have a family in our neighborhood who has been directly affected by this disease.
The disease is called Epidermolysis Bullosa (EB). I had never heard of it before I started working for HemaCare. In my conversations with a potential customer, I came to learn of EB because they do research for this rare disorder. I did a little research on it back then and found that it is a very dreadful, painful disease that can be fatal.
I would like to help the cause, but I need your help. This is a fund raising event to help raise money that will go to funding research to find a cure, provide patient and family support and wound care supplies.
Did you know that it can cost EB families up to $10,000 per month for necessary bandages?
"I fly, you buy". I'll run the 5K and you can help out by sponsoring me. All you have to do is click a button to donate. Any amount of money you feel comfortable with will help, even if it's just $10.00.
Thank you for supporting me in my efforts to raise money and awareness for the EB community, and debra of America. Please click the button on the right of the page to complete your donation. Every little bit helps us get closer to a cure for The Worst Disease You've Never Heard Of. Did you know that of those born with EB in 2014, 22% are no longer with us?
Most sincerely, Jen Heidemann
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