Participate in a debra of America Event!

debra of America’s mission is to improve the quality of life for all people living in the United States with Epidermolysis Bullosa (EB), their families, and caregivers through free programs and services while funding research to find a cure and treatments for EB.

EB is a rare genetic connective tissue disorder that affects 1 in 20,000 people in the United States. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma.

debra of America supports events all around the United States, hosted by passionate individuals who wish to raise money and awareness for Epidermolysis Bullosa.


3rd  Annual Knoxville 5K

Knoxville, TN August 13, 2016



2nd Annual dash4debra

Lake Forest, IL May 22, 2016



5th Annual Jogging for Jonah

Winston-Salem, NC May 14, 2016



2nd Annual Dig Up a Cure for EB

Lexington, NC April 16, 2016





5th Annual Rafi’s Run

New York, NY March 6, 2016



Do It Yourself Fundraising




Click here for a complete list of current and past events