Participate in a debra of America Event!
debra of America’s mission is to improve the quality of life for all people living in the United States with Epidermolysis Bullosa (EB), their families, and caregivers through free programs and services while funding research to find a cure and treatments for EB.
EB is a rare genetic connective tissue disorder that affects 1 in 20,000 people in the United States. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma.
debra of America supports events all around the United States, hosted by passionate individuals who wish to raise money and awareness for Epidermolysis Bullosa.
Knoxville, TN August 13, 2016
Lake Forest, IL May 22, 2016
Winston-Salem, NC May 14, 2016
Lexington, NC April 16, 2016
New York, NY March 6, 2016